There are some things about autism that are hard to live with.
It’s all relative because, let’s be honest, autism is hard to live with.
Let’s talk sleep.
When The Boy Child was a tiny(ish) baby his sleep pattern was text book.
It’s fair to say that he slept like a baby.
At eighteen months old, he went onto one nap a day and kept hold of that nap
right up until the summer before he started at Nursery School.
That’s when the fun started with sleeping at night.
I first wrote about his sleeping in May 2013:
For the last few years, The Boy Child has not slept well.
There’s many a night that he can be up out of bed in the middle of the night.
There’s many a night that he can be up out of bed two or three times in the middle of the night.
The pattern is the same.
99% of the time, he trots into our bedroom and fusses
until he can get in with us or one of us gets out of bed and takes him back to his own bed.
1% of the time, he goes into the bathroom, puts the light on,
sits on the loo (seat down) and reads out loud.
Until one of us gets out of bed and takes him back to his own bed.
And we haven’t even touched on the early morning starts.
The Boy Child considers any time from 5.30 am a good time to begin his day.
We pushed his bedtime back half an hour to 8 pm in the hope he would sleep later.
Today, I took out the single bed from his room and put in the double from the spare bedroom.
As we moved through 2014 and into 2015, this was the standard night time ritual.
I would go to bed with The Brainy One and wake up with The Boy Child.
In June of this year we realised that he had spent a whole night in his own bed,
then two nights, then a week.
We seemed to have turned a corner.
We were so hopeful. And continue to be so.
It’s no laughing matter when you realise that neither of us
has slept through the night for more than four years.
The dark rings under my eyes would defeat the hardiest of make-up artists.
Now there’s just the small matter of the time he wants to begin his day…